Luke Jenkins
Luke Jenkins 

Throughout Luke's life he underwent many operations and procedures. His main diagnosis was that of congenital heart disease, which was discovered during his mums 20 week antenatal scan. Luke was born in November 2004 and due to the antenatal diagnosis of congenital heart disease he had to be born via induced labour in St.Michaels hospital Bristol, this was in preparation for any emergency surgery that he required in Bristol children's hospital as they specialise in paediatric heart surgery.

Once Luke was born it was further discovered whilst in the intensive care unit of St.Michaels hospital in Bristol that he also had a condition called imperforate anus. Many children who have congenital heart disease can also have associated conditions due to them not developing fully in the womb. Luke had genetic testing to see if he suffered with a gene abnormality which could have caused his condition, however these results were negative and the cause for him not developing fully in the womb is unexplained. All the procedures, operations and other hospital visits are explained in the subsections of this page, years 0-3 and 4-7, including details of when he became quadriplegic after a diagnostic cardiac catheter and managed to walk again. Luke attended 3 different hospitals which were University Hospital of Wales Cardiff where he had a close relationship with his cardiologist Dr Uzun, who was the diagnosing doctor at the 20 week scan, along with the cardiac liaison nurses Claire and Wendy. All of his heart operations were completed in Bristol Childrens hospital as all children from Wales have to travel to England as no hospital in Wales currently offer this service. Finally Luke attended Great Ormond Street hospital for surgery and outpatients on a few occasions.

Please note that any information/opinions of medical procedures/treatments are only from our knowledge and not that of a professional. Please seek medical advice or guidance from a qualified medical professional.


There will be upcoming media coverage surrounding the outcome of the Bristol Cardiac review along with Luke's PHSO report so please return to the website where you will be able to view the reports in full once they are publsihed